Saturday, July 4, 2009

Happy 4th!!

Happy Independence Day everyone!

I'm still not online. Comcast has this silly idea about paying their bill every month to let you play online. I think I'll be able to pay it next week. For now, I'm breakfasting at Burger King before work and getting my fix. :)

We were able to coordinate John next chemo treatment (July 15- 18) with the vacation I had scheduled myself for. Kind of coincidental that I wasn't able to rent the house this year, yet his chemo worked right into the same time frame. That's fine... we can go next summer instead. The transplant is scheduled for Aug 11. Actually the BIG chemo treatment comes first, then the transplant. We expect him to be in the hospital until mid-September.

We found out the program they had at UPenn Hospital to give families lower parking rates was cancelled. They were offering books of 50 parking tickets for $80. Now we're back to $10 a day parking. Ah well.... 2 steps forward, 1 step back. The money you all so generously donated will help quite a bit with that!

John's hair is coming out very quickly now. I think it's time for him to go to the barber and get it shaved off. I haven't seen him in a few days, so I expect him to look quite different when I go to his place after work today! I think the hair loss will be more complete this time around. Two years ago, he still had eyelashes and eyebrows, some chest hair and arm and leg hair. This time, I think it's ALL going to go!

Well, time for me to hit the road and get to work. Yes, I'm working on the 4th of July. I don't expect to be very busy... the weather is gorgeous today! If it was raining, we'd be busy. Enjoy your holiday! I'll be heading to John's after work, and plan to make fireworks of our own! hehehehehe


a mouthy irish woman? ridiculous! said...

happy 4th love birds!


lisa said...

Enjoy the holiday...shish, boom, bang!!

Pseudonymous High School Teacher said...

Happy 4th of July Joanie. You and John are in my prayers.

Ice Queen said...

Hair is overrated. It just gets to be a sweaty mess in the summer.

Happy fourth and I hope the firework show is spectacular! ;-)

Jim and Garret said...

I hope you make BIG tips today! Happy happy 4th!

Sally's World said...

happy 4th july xxx

musingwoman said...

That sucks you had to work on a holiday, but I hope you enjoyed those fireworks. :)

The Retired One said...

I so admire your upbeat attitude!
Get John a baseball cap that reads "I'm a sexy bastard". He will love it.

I had an idea regarding the parking situation...can you ask to talk to the hospital Social Worker? They sometimes can get special passes for you to park in the employee parking lot or something? Or ask to talk to the Patient Advocate...I used to do Quality Management at a hospital...believe me there is a way around the parking fees or somewhere on the hospital campus grounds that they can give you a visitor pass to park for free there.

Jim and Garret said...

How about one of those hats with hair attached. Maybe John has always wanted long hair. :-)

Alix said...

The best part of your post, Joanie, is saying you and John will go to the rental house next year.

I believe it with all my heart. Glad you do too.

Happy 4th my dear friend - and lots of love to you and John.

Joanie M said...

Well, the 4th was a slow day at work, but not as slow as night shift probably was!

LOL Garret about getting the hat with hair. John Russo with a mullet! It boggles the mind! Actually he has a really nice off-white fedora we bought 2 years ago at the beach. He's been wearing that outside and my daughter knitted him a cap to wear in air conditioning. He'll be wearing that any day now. He's going to the barber after work today to get the rest of his hair shaved off.

Joan (the retired one), I love the idea of that baseball cap!

Alix, we are keeping such positive thoughts about this whole journey. I have every confidence that he'll still be here with me next summer to go to the beach! If you saw John, you'd never know he was sick, except for the bald patches here and there. lol

Joanie M said...

I just sent John a message with the suggestions for hats for him. No comment on the mullet hat, but for the sexy bastard baseball cap, he had this to say: If I need a sign to tell people, then I am not sexy. When a person is really sexy, it shows. That is how you know when you first saw me and how I knew when I saw you.

Is he a great guy or what??? The man can still make my heart beat faster just by walking into the room.

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