PARASAILING WAS FUN!!!

I WONDER WHAT'S NEXT? ZIP LINING MAYBE???



Saturday, July 18, 2009

John is doing GREAT!

I hope writing about how John is doing with his chemo isn't too repetitive or boring. I guess if it is, you can always skip it. I say this because over the past couple of weeks, I've lost a follower and gained a follower twice. And I can't figure out who it was either time.

Anyway! I just got home from spending the day at HUP (The Hospital at the University of Pennsylvania) with John. I'm happy to report that he spent no time in bed! Last month, he was in bed all the time, and his fatigue was something else! I kept telling him, "You have to keep moving, you have to fight the fatigue or it will just get worse." This time I reminded him that lying in bed all the time, he could develop blog clots in his legs and he needs to keep his circulation going. THAT got his ass up!

I'm starting to bring my own food for me to eat. The cafeteria sucks and I can't keep spending $20-30 a day for food! There's a microwave and a fridge in his room, so I'm going to bring some Lean Cuisine-type meals for me to have.

We're hoping he gets sprung tomorrow. He can leave as soon as his chemo is finished, even if it's in the middle of the night. (he better not call me in the middle of the night for a ride home!) Unless, of course, he starts with any vomiting, which he did not have last month.

Today I saw quite a few patients wearing gowns, masks and gloves. I think they were all transplant patients. Everyone walks the halls to get some kind of exercise. Around and around they all go, pushing their IV poles. John and I did our fair share of walking around today.

One thing we learned is John can go off-floor and sit in the courtyard for some fresh air. He's not allowed to do that now because he's on constant chemo. He needs to be on the floor in case one of his bags empties and it needs replacing. But if he were getting it every 8 or 12 hours and had some down time, we could go outside. Also, after his transplant we could do it too.

John brought his laptop with him and several DVD movies. Today we watched You Can't Take It With You with Jimmy Stewart and Lionel Barrymore. It was a good flick! I love those old movies! After dinner we watched The Fifth Element with Bruce Willis and Milla Jovovich. It was.. um.. ok, I guess. I remember seeing it years ago and I guess I didn't catch the humor back then. It seems like it was a farce! We also played some Othello and some Backgammon, and watched a few shows on TV this evening.

The thing that really bothers me is, I'm the only visitor John has. Last month his sister visited for a bit and my niece, who is a post op nurse at HUP stopped by a few times. Katie (my niece) is off this weekend and I think John's sister was at the beach. But his brothers know he's there and 2 of them live in the city! Granted, one of his brothers lives in Maine but 2 are in Philly and 1 is right across the bridge in NJ. They don't even call to see how he is or if he needs anything!

John doesn't have a relationship with any of his kids (the one thing about him I don't like), so, of course, he won't hear from them. Being in the Army all those years, he couldn't be near them, so he chose to distance himself from them. I think he regrets it now. He has 2 sons from his first marriage and a daughter from another marriage. Ah, well... it was his choice ot make and I don't agree with it.

So that's my update for today and I have no idea how to end this! LOL



12 comments:

Rachel Cotterill said...

It's hard when it seems like the rest of the family aren't there for him as they should be, but at least he knows he has you. glad to hear he's doing well.

Sally's World said...

I'm so glad he's doing well, i imagine you are such a tower of strength for him too, it never never gets boring, we all feel invested, it is weird how just being a blog follower makes you feel close to people, like a good chat with an old friend....

I have began to count on the love and support i get from my bloggy friends, i hope i give as much as i get.

with love, still keeping you in my prayers

sal xxxxxxxxxx

Vodka Mom said...

i am glad that things are going well. we are all praying for you guys!

♥ Braja said...

I loved your ending :)) Glad things are going well, Joanie...you sound up....

Amy said...

Always glad to hear good news!

Jim and Garret said...

I'm sad to hear about the lack of visitors too. Bastards!

I'm glad you're keeping him moving and busy. I've never had to stay in a hospital but I assume it's boredom!

Ice Queen said...

Personally, I like to hear about how you guys are doing. No one is holding a gun to anyone's head saying "Read!"

I think you guys should start dance parties in the hall. That would get everyone's spirits up. Who can resist a good dance party?

Pseudonymous High School Teacher said...

This post made me happy ; -) glad things are going well.

bernthis said...

Yay! John is doing better. I am so happy. If it makes you feel better I had no idea what the 5th element was all about, none or the Matrix for that matter. sending lots of love

Ann's Rants said...

Great news. So glad he is getting out soon, and in the courtyard for now.

xo

Sprite's Keeper said...

What great news! It sounds like it's all going very well for John and for you! I hope he gets sprung soon so you can get back to the normalcy.

Kat said...

I am so happy John is doing well. The thing about the family, well, sometimes I have to remind myself that not all families are as well balanced as mine. It really isn't anyones "fault" and family dynamics are often so complicated. Tell John to take it easy and OMG he really does kinda look like Fester with no hair. Totally endearing!