PARASAILING WAS FUN!!!

I WONDER WHAT'S NEXT? ZIP LINING MAYBE???



Tuesday, September 1, 2009

UPDATE: Neutropenia

This is going to be a quick update because I have to get down to the hospital and I'm afraid I'm gonna hit rush hour traffic (so what else is new?)

John's doing pretty well. His blood count numbers are dropping daily. His is considered neutropenic, meaning his immune system is gone and he has to be careful of bacteria, mold and other fun stuff. He has to wear a mask when he leaves the room. I have to wash my hands whenever I enter his room. His meals must be fully cooked, no raw fruits or veggies, no soft cheeses, no blue cheese dressing, no fountain drinks, etc.

I wasn't able to go to the hospital on Friday or Saturday because I had to take Dani to college, so John had no visitors (this just pisses me off that his own sister and/or brothers don't call, don't go in and 2 of them live in the city!!!!) Sorry.. that was turning into a rant! He had a visit today from my daughter's boyfriend's aunt who works in cancer research at the hospital... a complete stranger takes the time but his own family won't. OK, enough of that.

Anyway, by Sunday morning, I'm getting text messages from John saying "I'm tired of being here". "The food is so bland. I don't want to eat it any more." "I have no more good movies to watch." I thought, "OH Lord! I need to get in there!" I walked in the door with 3 Red Box movies, Wawa Diet green tea and clean clothes for him and he was a happy man! He jumped out of bed, and gave me a big hug and started to cry! He just missed me so much! He cheered up right away which was good. I got his glasses fixed so now he can see clearly again.

So this morning, before I left for work, the doctor came in and told John he can expect to spike fevers in the next 4 or 5 days. He also thought John looked much better than most transplant patients at this stage, so that was encouraging!

John can expect to be in the hospital for and other 2 weeks or maybe even more. Only time will tell. I know there's nore I wanted to tell but now I can't remember!


19 comments:

~Thought's By Dena~ said...

after reading this I just wanna give you a BIG HUG!!

Matty said...

A hug from me too.

Not The Rockefellers said...

Thank goodness John has Joanie..
Your love and support give him the will to get well..

I don't mean to sound trite, it just came out that way :)

Peace - Rene

linlah said...

Sounds like good progress and sounds like he appreciate your efforts.

Garret of Jim and Garret said...

I'm in for the hug too! John is lucky to have you.

Alix said...

Joanie, I've said it before and I'll say it again.... you are the best medicine that man has. And you have powerful friendship energy behind you. Just keep the faith, keep believing, keep hoping and keep strong. The rewards are coming.

I love you.

♥ Braja said...

Gosh it all happened so quickly.....glad to hear it's going well Joanie....love to John...
xo

Maureen@IslandRoar said...

It sounds like things are going better than expected medically.
Don't you just love "family" sometimes??

Hang in there...

Ann's Rants said...

Thank goodness you two have each other.

His tears made tears in my eyes.

lisa said...

This man needs you and loves you very much. You're amazing and selfless.

Peggy said...

Awe;
You are a lucky women, John loves you so much.
Keep the faith sister, you're going to get through this!
Hugs to you both

Kat said...

I just want to give you the biggest hug in the world right now! GIve John my best wishes!

Tracey said...

I just wish i lived nearer.. we'd pop in to see him.. give him a massive hug from me please xxx

Joanie M said...

Tracey, your card arrived!!! So did yours, Garet!

Pastor Sharon said...

Love you Joanie! Love to John as well!

Tracey said...

Yerrrrr I'm really pleased he got the card. I never trust the postal service hehe.

I attached a postcard to so he could see the area i'm from.. thought it might be nice to see

big hugs xxxxx

Eternal Lizdom said...

I've been thinking about you lots, lady! A good update- and hopefully many more good updates are coming soon!

Lilly said...

Gosh you have been busy. Its hard for both of you. And exhausting. So sorry John's family arent a better support for you at a time like this. Wonderful though that you have each other. Hang on tight. Much love and prayers to you both from 12,000 miles away. I have just started drinking green tea - must check that one out.

Rachel C said...

I suffer from neutropenia myself... I live alone in a big city it must be wonderful to have someone there... He is LUCKY.. praying for you both!